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CanPKU believes that creating awareness around Tyrosinemia Type-1 and other rare diseases helps patients…Because Knowledge Leads to Better Health.
When people are aware of a condition, they are more likely to be understanding and supportive. This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.
According to Newborn Screening Ontario the instance of a baby being born with Tyrosinemia is type 1 is 1 in 100,000. Find out more here
Downloadable Resources for Individuals with TYR-1
Formula Based Information
Return to Therapy (care/diet) and Diet for Life
Region or Province Based
Apps to help you manage your TYR-1
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