We want to help you at each step of the way.

We understand some of the resources are specific to disorders but many can overlap.

We also have peer support if you just need to talk to someone. Please get in touch.

CanPKU+ would like to offer a zoom chat to allow siblings without the rare to get together and chat. We need more participants to make this happen. Please let us know if this is an interest for you

Downloadable Resources:

Website Links:

PTC Therapies Insightful Moments has created a Siblings Roadmap to help navigate the sibling that does not have a rare disorder

PTC Therapies Insightful Moments a créé une feuille de route pour les frères et sœurs pour aider à naviguer dans le frère ou la sœur qui n'a pas de maladie rare

YouTube Video Links:

Events and Webinars:

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