Mental Health

We understand that your disorder affects more than just your physical body,

but your mental health too.


See below for some resources that may assist your mental health.

We also have peer support if you just need to talk to someone. Please get in touch.

Downloadable Resources:

Insightful Moments has produced this ROADMAP for Discovering Wellness - Navigating Life

Insightful Moments has produced this ROADMAP for Discovering Wellness - Coping and Accepting


Website Links:

2021 May - Global Genes Mental health and self care resources for rare patients and caregivers


YouTube Video Links:

2022 - Global Genes - Building a Coping Toolbox as a Rare Disease Parent or Caregiver

2022 - Global Genes - Managing Mental Health, Ambiguous Grief, and the Impacts of Diagnosis and Disease Progression


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