Welcome to the CanPKU Fundraising Page!
CanPKU could not do what it does without the support of our wonderful community hosting events in support of our mission. We truly appreciate and value your efforts! Below are some ideas and suggestions of how you can support CanPKU and have fun at the same time.
At the bottom of the page you will find our calendar which shows upcoming fundraising events.
Please keep in mind that due to our Not for Profit status, we are currently unable to issue tax receipts for donations.
Please email email@example.com with any and all fundraising questions and ideas.
Our Fundraising Chair, Melissa would love to hear from you!
Upcoming Fundraising Events
There are no upcoming fundraising events at this time. Would you like to host an event?
Reach out to Melissa at firstname.lastname@example.org for more information or ideas on how you can host a fundraiser in your area.
2022 Fundraising Year in Review
Spare for Rare (previously known as PINS 4 PKU)
Spare for Rare Event Forms
Contact email@example.com for more information or assistance with hosting an event!
Book Launch for Danielle Mohr's "Drift"
Lucas Mohr was born in 2014 and has PKU. His aunt is Danielle Mohr. Lucas' mom reached out to CanPKU as her sister in law, Danielle, has dedicated her book called "Drift" to Lucas. In addition to this sweet dedication, they have decided in honour of Lucas - they will donate a portion of the sales of the book to CanPKU. This is also mentioned on the dedication page. We are very honoured to be considered for this donation. The book has officially launched! The website for the book is https://www.daniellemohr.com/drift/
You do not need to have a kindle to read this. The kindle app is available for free. All you need is an Amazon account to access the kindle app.
By purchasing through this link a portion of the sale may come from Amazon to CanPKU.
Past Fundraising Events
PKU Poker Run
In September 2014 Chris and Angel Krauskopf welcome their daughter, Delilah, into the world. At five days old, Delilah was diagnosed with PKU.
In Celebration of Delilah’s first birthday her parents and grandmother Deb Brown; Finance Coordinator with Hamilton Health Sciences, created the PKU FUND. The PKU FUND is specifically used for patient amenities such as; group celebrations, cooking demonstrations and resource materials.
In 2016, the passion continued with Delilah’s grandfather Gene Edwards. Gene is a member of the IRONHAWKS motorcycle club. The club organized a ride to celebrate PKU patients, families and friends. The first run that July donated $2000 to the PKU FUND at McMaster Children’s Hospital.
In 2017, this loving family expanded their reach and included CanPKU in their fundraising efforts. PKU patients, families and friends stand by the roadside waiting in anticipation for the riders to pass by. What a sight to see and experience. CanPKU president, John Adams, attended the second year with informational materials. A donation of $1000 was given to Camp MagniPHEque and a second gift to PKU FUND was donated.
"At the beginning of the ride as the bikers cruise by, they greet us all the with smiles, waves and honking horns as they continued their journey. That very moment is one that will never be forgotten and we look forward to next year’s event."
The tradition continued in 2018 with both locations being recipients of the valued donations. It is an exciting annual tradition. Unfortunately, COVID 19 cooled this event for a bit, but we are excited to see if it returns. It is a wonderful event; not only for the funds they raise, but the sense of community they continue to grow!
2016 Peter Wardell’s Boston Marathon
Determined to fulfill his lifelong goal of running a marathon and helping raise funds for two different disorders near and dear to his heart, CanPKU was thrilled to receive a donation from Peter Wardell in May 2016. Peter raised a whopping $3,858 for CanPKU and had this to say:
This fundraiser was held in Sparwood, BC and included light refreshments. Tickets were $45 each, with $25 of that going to CanPKU!
Rosie P. chose the image to be painted.
This was an amazingly unique fundraiser that allowed Rosie's mom, Nicole, to enjoy the evening as someone else ran the event for her once the registration was completed. We think they did a great job and applaud them for thinking outside the box on this fundraiser! Thank you to Rosie, Nicole & all attendees for the donation!!
PKU Walkathon Kamloops
Artetvino Fundraiser for CanPKU!
This event offered an inspiring and stress-free, guided painting session, and supported CanPKU at the same time! Instructions were given by a Professional Art Therapist and all materials were provided. Those who attended this fun event left with their very own masterpiece!
This event was held in Quebec. The admission fee was $35.00 per person. Artetvino donated $10.00 of each charge collected to The Canadian PKU & Allied Disorders Inc. Space was limited to 40 participants.
Thank you to Artetvino for this fundraiser!
2014 Avery’s Ride for PKU
PKU uncle, Kevin Dube, cycled across Canada in 71 days, through all weather and terrains in the summer of 2014 to raise awareness in honour of his niece, Avery. He was determined to make a difference for Avery and all those living with PKU. The route included every provincial capital and the 16 cities with a PKU-treating clinic. Ultimately, this project generated dozens of media opportunities and raised over $50,000 for CanPKU. In 2015, CanPKU presented Kevin Dube with our Hero of PKU Award.
Over the years we have seen many different fundraisers. From Penny Drives to Pampered Chef Parties, a Haircut-a-thon to Polo Matches! Be creative, and be sure to let us know if you are hosting something with proceeds going to CanPKU so that we can post the information above.
Get your school, sports team, co-workers and classmates involved with a fundraiser to spread awareness and support our education, events and advocacy efforts!
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