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Welcome to the CanPKU Fundraising Page!

CanPKU could not do what it does without the support of our wonderful community hosting events in support of our mission. We truly appreciate and value your efforts! Below are some ideas and suggestions of how you can support CanPKU and have fun at the same time. 


 At the bottom of the page you will find our calendar which shows upcoming fundraising events.

Please keep in mind that due to our Not for Profit status, we are currently unable to issue tax receipts for donations.


Please email fundraising@canpku.org with any and all fundraising questions and ideas.

Our Fundraising Chair, Melissa would love to hear from you!

Upcoming Fundraising Events

There are no upcoming fundraising events at this time.  Would you like to host an event?

Reach out to Melissa at fundraising@canpku.org for more information or ideas on how you can host a fundraiser in your area. 

2022 Fundraising Year in Review



Fundraising Events


Spare for Rare (previously known as PINS 4 PKU)

First introduced in 2018; PINS4PKU helped raise money to provide scholarships for families to attend Camp MagniPHEque. Families and friends from across the nation (with and without PKU) joined together and went bowling. Bowlers raise pledges and came out for a day of fun!

After just 2 years, Pins4PKU had raised over $20,000! This fundraiser has sent many families from coast to coast to both the Saskatchewan and Ontario CanPKU camps. Covid may have slowed down this incredible fundraiser but now that people can gather, we think it’s time to schedule a PINS4PKU event in your community, but there have been some changes! PINS4PKU has been rebranded. As we move forward with our goals and missions at CanPKU, we want to recognize all of the allied disorders that we support with our fundraisers too. With that being said, PINS4PKU will now be known as Spare for Rare! Spare for Rare is here to stay and is ready to happen at a bowling alley near you!

Are you interested in hosting a Spare for Rare event? It's just as easy as planning a day of bowling with your family. In fact, if you need extra help - we are happy to provide it! We can call the bowling center and arrange the booking if you prefer, help with finalizing details, or anything else you may need. Please email fundraising@canpku.org to arrange this assistance.

“I don’t think I could host a big event like this.” - Previous Event Host

Sure, some people have gone WAY above and beyond and arranged silent auctions, bake sales, etc. to push the fundraising even further - but it is whatever you are comfortable with doing. We appreciate every dollar and our fundraising chair, Melissa, would be happy to help you with anything you need.


Spare for Rare Event Forms

Contact fundraising@canpku.org for more information or assistance with hosting an event!


Book Launch for Danielle Mohr's "Drift"

Lucas Mohr was born in 2014 and has PKU. His aunt is Danielle Mohr. Lucas' mom reached out to CanPKU as her sister in law, Danielle, has dedicated her book called "Drift" to Lucas. In addition to this sweet dedication, they have decided in honour of Lucas - they will donate a portion of the sales of the book to CanPKU. This is also mentioned on the dedication page. We are very honoured to be considered for this donation. The book has officially launched! The website for the book is  https://www.daniellemohr.com/drift/ 

You do not need to have a kindle to read this. The kindle app is available for free. All you need is an Amazon account to access the kindle app.

By purchasing through this link a portion of the sale may come from Amazon to CanPKU.



Past Fundraising Events

PKU Poker Run

In September 2014 Chris and Angel Krauskopf welcome their daughter, Delilah, into the world. At five days old, Delilah was diagnosed with PKU.

In Celebration of Delilah’s first birthday her parents and grandmother Deb Brown; Finance Coordinator with Hamilton Health Sciences, created the PKU FUND. The PKU FUND is specifically used for patient amenities such as; group celebrations, cooking demonstrations and resource materials.

In 2016, the passion continued with Delilah’s grandfather Gene Edwards. Gene is a member of the IRONHAWKS motorcycle club. The club organized a ride to celebrate PKU patients, families and friends. The first run that July donated $2000 to the PKU FUND at McMaster Children’s Hospital.

In 2017, this loving family expanded their reach and included CanPKU in their fundraising efforts. PKU patients, families and friends stand by the roadside waiting in anticipation for the riders to pass by. What a sight to see and experience. CanPKU president, John Adams, attended the second year with informational materials. A donation of $1000 was given to Camp MagniPHEque and a second gift to PKU FUND was donated.

"At the beginning of the ride as the bikers cruise by, they greet us all the with smiles, waves and honking horns as they continued their journey. That very moment is one that will never be forgotten and we look forward to next year’s event."

The tradition continued in 2018 with both locations being recipients of the valued donations. It is an exciting annual tradition. Unfortunately, COVID 19 cooled this event for a bit, but we are excited to see if it returns. It is a wonderful event; not only for the funds they raise, but the sense of community they continue to grow!

2016 Peter Wardell’s Boston Marathon

Determined to fulfill his lifelong goal of running a marathon and helping raise funds for two different disorders near and dear to his heart, CanPKU was thrilled to receive a donation from Peter Wardell in May 2016. Peter raised a whopping $3,858 for CanPKU and had this to say:

I’m so happy to have been able to donate $3,858 CAD for CanPKU. CanPKU has been so amazing in educating, advocating and making us feel a welcome member of the PKU community ever since we found out our 4 year old daughter Luka had PKU a week after she was born. 

As a 5 year old, I watched my father train for a marathon and knew I wanted to do the same one day.  I also wanted to raise awareness for PKU (Phenylketonuria) which my daughter Luka has, and MS which impacts my sister Melissa. I qualified for the 2016 Boston marathon at my maiden marathon attempt in Edmonton in August 2015 with a time of 3:07:06. My BHAG (Big Hairy Audacious Goal) was to try and cross the line in under 3 hours in the Boston Marathon in April 2016.

After 4 months of training 5 days a week, and up to 95km/week I crossed the line in 3 hours, 2 minutes and 36 seconds. It was shy of my sub 3 hour goal but conditions considered (it was way hotter than anticipated) I was really happy with the result. Of 31,000 runners, I ranked 6791 (based upon my qualifying time) and crossed the line in 1777th position. It was such an awesome feeling of accomplishment and very humbling to see the support pour in for the PKU/MS fundraising campaign. I owe a lot to my very patient and support wife, and two girls; Luka (4) and Avideh (2).

Thank you for all the contributions for CanPKU, and we look forward to continuing to be an engaged family in the PKU community.


Paint Night

This fundraiser was held in Sparwood, BC and included light refreshments. Tickets were $45 each, with $25 of that going to CanPKU!

Rosie P. chose the image to be painted.


This was an amazingly unique fundraiser that allowed Rosie's mom, Nicole, to enjoy the evening as someone else ran the event for her once the registration was completed. We think they did a great job and applaud them for thinking outside the box on this fundraiser! Thank you to Rosie, Nicole & all attendees for the donation!!

PKU Walkathon Kamloops

May is PKU Awareness Month. PKU Adult, Amanda C, along with Brianne, who is a friend and a PKU Mom planned these amazing walk-a-thons for a number of years. They were joined by approximately 7 families that we know of living in Kamloops that have someone they love affected by PKU. They walked Riverside Park and offered a large silent auction to help raise money for CanPKU. THANKS LADIES for your donations. We appreciate the annual efforts made for this event. We know they are hard to pull off!

Artetvino Fundraiser for CanPKU!

This event offered an inspiring and stress-free, guided painting session, and supported CanPKU at the same time! Instructions were given by a Professional Art Therapist and all materials were provided. Those who attended this fun event left with their very own masterpiece!

This event was held in Quebec. The admission fee was $35.00 per person. Artetvino donated $10.00 of each charge collected to The Canadian PKU & Allied Disorders Inc. Space was limited to 40 participants.

Thank you to Artetvino for this fundraiser!

2014 Avery’s Ride for PKU

PKU uncle, Kevin Dube, cycled across Canada in 71 days, through all weather and terrains in the summer of 2014 to raise awareness in honour of his niece, Avery. He was determined to make a difference for Avery and all those living with PKU. The route included every provincial capital and the 16 cities with a PKU-treating clinic.  Ultimately, this project generated dozens of media opportunities and raised over $50,000 for CanPKU.  In 2015, CanPKU presented Kevin Dube with our Hero of PKU Award.

Check out his appearace on Breakfast Television

 Read the Avery's Ride Press Release - Jan 31, 2014 for full details. 

Click here for more detail on this fundraiser!

Other Fundraisers

Over the years we have seen many different fundraisers. From Penny Drives to Pampered Chef Parties, a Haircut-a-thon to Polo Matches!  Be creative, and be sure to let us know if you are hosting something with proceeds going to CanPKU so that we can post the information above.  

Get your school, sports team, co-workers and classmates involved with a fundraiser to spread awareness and support our education, events and advocacy efforts!


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CONTACT US

260 Adelaide Street East, #180
Toronto, ON, M5A 1N1, Canada
Toll Free: 1-877-226-7581
Email: info@canpku.org


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