| Stay Tuned. This page is still under construction. Restez à l'écoute. Cette page est en cours de construction. |
Awareness |
CanPKU believes that creating awareness around Maple Syrup Urinary Disease (MSUD) and other rare diseases helps patients…Because Knowledge Leads to Better Health. When people are aware of a condition, they are more likely to be understanding and supportive. This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments. |
According to Newborn Screening Ontario the instance of babies born with MSUD is 1 in 200,000 Find out more here |
Introducing our MSUD Chair Person - Susan |
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Downloadable Resources for Individuals with MSUD |
General Information |
USA - MSUD Family Support Group - Website https://msud-support.org/
Nutricia - MSUD patient can find resources on their YouTube channel: Nutricia Metabolics Canada - YouTube Medical Management of MSUD Nicholas Ah Mew MD, Children’s National Health System(Video) Maple Syrup Urine Disease | Pathogenesis, Signs & Symptoms, Subtypes, Diagnosis and TreatmentNORD - https://rarediseases.org/ - Information on MSUD Nutritional value of some common foods provided by Health Canada Formula Based Information RxModality has solutions for MSUD. Unfortunately, at this time, none of these products have coverage at the moment in Canada. Should you have any questions on these products email Petr Formanek or want to help us advocate for their coverage please contact us at info@canpku.org MetaXJump10 ZeroVilMinis ZeroVil KJA ZeroSystems |
Nutricia has a Maxamum recipe book available in English and French. You can download it right from here. | Nutricia propose un livre de recettes Maxamum disponible en anglais et en français. Vous pouvez le télécharger directement à partir d'ici. |
Infancy |
Toddler |
Nutricia - Youtube Videos - Nutricia Metabolics Canada- How to read a nutrition facts table - YouTube Nutricia - Youtube Videos - Nutricia Metabolics Canada - How to calculate the amount of protein in your portion size - YouTube Nutricia - Youtube Videos - Nutricia Metabolics Canada - How to plan your weekly low protein meals - YouTube |
School Aged |
Teens |
Maternal MSUD |
Return to Therapy (care/diet) and Diet for Life |
Awareness |
Research
Region or Province Based |
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