Urea Cycle Disorders / le trouble du cycle de l’urée (TCU)
| Stay Tuned. This page is still under construction. Restez à l'écoute. Cette page est en cours de construction. |
Awareness |
CanPKU+ believes that creating awareness around Urea Cycle Disorder and other rare diseases helps patients…Because Knowledge Leads to Better Health. When people are aware of a condition, they are more likely to be understanding and supportive. This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments. |
Newborn Screening for OTC - Point-of-care screening and clinical considerations for OTC deficiency: Is NBS ready?
Downloadable Resources for Individuals with UCD Don't forget to link back to GENERAL DOWNLOADS which have over all downloads for you. You can also check out the resources under the Research and Patient Support Drop down menu. |
General Information and Links |
2021 - Nutricia - Fact Sheet on UCD |
Infancy |
Eating Well |
2020 - Abbott - UCD Food Guide |
Other Sites |
Region or Province Based |
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