Stay Tuned. This page is still under construction.

Restez à l'écoute. Cette page est en cours de construction.

Although we wish we had the resources to help everyone, we are limited. We include any disorder that includes a low protein diet under our umbrella to ensure everyone has access to a patient support group. There is a Canadian Group for Organic Acidemia. We encourage you to check out https://oaanews.org/ for more assistance.

Awareness

CanPKU believes that creating awareness around Methylmalonic Acidemia & Propionic Acidemia (MMA/PA) and other rare diseases helps patients…Because Knowledge Leads to Better Health.

When people are aware of a condition, they are more likely to be understanding and supportive.  This might be as simple as ensuring that there are appropriate food choices at the next party your child attends, or it might mean that a politician will fight on your behalf for coverage of treatments.

Downloadable Resources for Individuals with MMA/PA

General Information and Links

Infancy

2020 Nutricia - Temple to MMA/PA- English

School Aged

2022 - Cambrooke Back to School Guide for IEMs (English) Page 1 Page 2

Teens

Return to Therapy (care/diet) and Diet for Life