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Advocacy in Action
Training workshops, campaign updates, and opportunities to engage with decision-makers about access, awareness, and equity for rare disorders.
Explore Advocacy in Action |
Networking Groups (Stay tuned, coming soon)
Informal gatherings - online and in person - to share experiences, ask questions, and connect with others who understand life with rare disorders. Please note these were formerly called "Chat Cafes" but we realize they are so much more than that!
View Networking Groups
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Want to know when the next event is happening?
Check the events calendar below, or sign up for event updates in your subscriptions so you don't miss any news!
Participation in Clinic Events
CanPKU+ partners with metabolic clinics across Canada to support clinic-hosted days, patient information sessions, and research awareness events. Our team may provide resources, displays, and presentations to connect families with national support networks.
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