Required Materials
Bronze = $2,500 Silver = $4,000 Gold = $7,000 Platinum = $12,000+
Timeline
Dr Reddy Vinod Ramachandran PhD vramachandran@drreddys.com KUVAN GENERIC BRONZE OFFERED 1D, 1C
Robert Herrington rherrington@drreddys.com INVOICE SENT 2/16 SPONSOR SAID MAY 16TH PMT PAID MAY15TH 2000 - 17.50 fees Recordati Rare Disease France Lelel Sr Director Med affairs lebel.f@recordati.com www.recordatirarediseases.com/ca 1, 1b, 1c
Isabel De Araujo, Sr Med Sc Liaison Med Affairs araujo.i@recordati.com Stated if we have a project they will fund. Doesnt do blanket funding LOOKING TO PARTNER WITH A WELLNESS PACKAGE Notes by Number See last column of above table to reference the notes here. 1 - Sent invitation to sponsor Dec 6, 2023 by Tanya 1b - Sent reminder Jan 18, 2024 by Tanya 1c - Reminder sent Feb 8, 2024 by Tanya 1d - Reminder sent April 30, 2024 by tanya 1e - Reminder sent May 15th by Tanya 1f - Made a call seeking to reach sponsor. No answer. Left Message June 27 by tanya 1g - Reminder sent Jun 27 by tanya (email) 1h - Aug 1 - REminder sent 2 - Declined sponsorship as no active contracts. Will continue to try and fit us into their needs this year. 3 - Galen runs one year behind. So this year is actually paying for 2023 and we reach out in Q4 regarding the current years sponsorship until the time they can do two in one year. This is the result of them honouring an agreement that was made with a different person, but not paid forward to us. 4 - First 6 months at 30,000 CAD was allocated from the 2023 budget, John was late in applying for grant/ problem with payment processor caused this to come from 2024 budget. Unsure if this will affect donation amount. 5 - Asked about Chef Neil for the BC event. 6 - Checking with accounting regarding payment or been submitted to accounting 6A - Emailed to look into unpaid invoice. 6B - Resent invoice. Awaiting Payment 7 - Asked John when to apply next - Reply from John, Every 6 months. John confirmed end of May start of June would be application date. Waiting on John as he still handles Biomarin 7A - John met with Phrma in Feb. Unsure discussions. Last payment Dec 5, 2023. John handles Phrma as it is a unique sponsorship. talking to Phrma July 2024 7B - Jul 18 message from John - Meeting with PhRMA yesterday morning went well. They promised an early decision on 2024 sponsorship. 8, Spoke to Angela Kurtz at GMDI and she suggested she may have a contact who is tying up loose ends of Synlogic and paying out any final bills. She will look into potential getting us some of the promised scholarship. 9. Submitted application to IMC - Document 14 - Offered supply of food samples, and requested we ask again in July about sponsorship - emailed a follow up June 27
New Considerations for Sponsorship
Notes by Number See last column of above table to reference the notes here. Drop Aeglea as a sponsor potential. Acquired by another company who is focused on IBD. Trial for the HCU drug did not go well. 1 - Sent invitation to sponsor Dec 6, 2023 - by Tanya 1b - Sent follow up Jan 18th, 2024 - by Tanya 1c - Sent Feb 5 - By Tanya 1d - sent reminder apr 30 by tanya 2 - Email returned - bad email 3 - Company indicated sponsorship 4 - Company paid sponorship 5 - Sponsorship page has been updated 10 - PKU trial now enrolling 11 - Mednuik pheburane - ucd avail in cnada 1 844 433-4441 950, boul. Michèle-Bohec J7C 5E2 12 - HCU Meds (Betaine) 13 - https://www.ultragenyx.com/our-research/pipeline/ 14 - Offered supply of food samples, and requested we ask again in July about sponsorship
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Discussions
Newborn Screening Ontario - For cross promotion?
Members of the Group
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