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Newly Diagnosed Pathway

Move through each step at your own pace. You do not need to do everything at once.

Some steps include items marked "Coming soon" as we continue building resources across all disorders.
Step 1 - Understand the Diagnosis
Start Here PKU HCU MSUD UCDs
Step 2 - What needs to happen right away
Clinic Care Find Clinic Medical Nutrition Emergency Planning (HCU)
Emergency Planning (PKU, MSUD, UCDs - coming soon)
Step 3 - Build daily routines
Nourish Low Protein Basics Grocery Shopping Recipes Flourish
Step 4 - Find support and community
Connect Stories Events Membership
Step 5 - Explore more when ready
Advocacy Access Registries Studies