Pegzilarginase (Loargys®): What Canadians with ARG1-D Should Know
Loargys® (pegzilarginase) is an enzyme therapy for people living with Arginase 1 Deficiency (ARG1-D). In Canada, the treatment has now moved through major regulatory and health technology assessment milestones, including a positive final reimbursement recommendation from Canada's Drug Agency (CDA-AMC). The next phase is focused on reimbursement negotiations and public drug-plan funding decisions.
CDA-AMC has issued a final recommendation that Loargys® be reimbursed with conditions for eligible patients living with ARG1-D. A positive recommendation is an important milestone, but it does not mean that public coverage is automatically available across Canada. Additional reimbursement and drug-plan decisions are still required.
The Canadian access pathway
Loargys has progressed through several important steps in the Canadian treatment-access process.
Timeline: From clinical development toward Canadian access
CanPKU+ Advocacy: Community voice in the review
CanPKU+ participated in the CDA-AMC review on behalf of the community and provided feedback after the draft recommendation was released. Several important issues raised through that advocacy are reflected in the final guidance.
Language submitted by CanPKU+ about what meaningful treatment benefit looks like, including preserving mobility, maintaining communication and participating in school and community life, is reflected directly in the final CDA-AMC implementation guidance. It is a powerful example of why patient and caregiver voices belong in reimbursement decisions.
Want to see the changes in more detail? Our advocacy update compares what CanPKU+ raised during consultation with the final recommendation.
Read: What We Asked. What Changed. View the CDA-AMC ReviewTrial information: What did the research show?
The key evidence for pegzilarginase comes from the Phase 3 PEACE trial, a randomized, double-blind, placebo-controlled, multicentre study involving children and adults with ARG1-D. The study enrolled 32 participants.
The published trial also reported clinically relevant functional mobility findings with pegzilarginase treatment.
Company information: Who developed Loargys?
Pegzilarginase was developed in clinical trials under the sponsorship of Aeglea BioTherapeutics, which sponsored the Phase 3 PEACE study.
The therapy is now being advanced commercially by Immedica Pharma AB, a pharmaceutical company headquartered in Stockholm, Sweden that focuses on rare diseases.
What happens next? From recommendation to reimbursement
The positive CDA-AMC recommendation is a major milestone, but recommendation and reimbursement are not the same thing.
The next phase involves reimbursement processes and decisions by participating federal, provincial and territorial public drug plans. Timing and coverage criteria can differ between jurisdictions.
CanPKU+ will continue to follow the reimbursement process and advocate for fair, timely and consistent access for Canadians living with ARG1-D.
We will update this page as additional reimbursement and public coverage milestones are reached.
Sources and further reading
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Canada's Drug Agency (CDA-AMC).
Pegzilarginase reimbursement review.
View the CDA-AMC review -
CanPKU+.
What We Asked. What Changed. Loargys Advocacy Update.
Read the CanPKU+ advocacy update -
Sanchez Russo R, Gasperini S, Bubb G, et al.
Efficacy and safety of pegzilarginase in arginase 1 deficiency
(PEACE): a phase 3, randomized, double-blind, placebo-controlled,
multi-centre trial. EClinicalMedicine. 2024;68:102405.
ClinicalTrials.gov NCT03921541 -
Immedica Pharma AB.
Loargys® (pegzilarginase) regulatory and product information.
Immedica -
National Institute for Health and Care Excellence (NICE).
Pegzilarginase for treating arginase-1 deficiency in people
2 years and over (HST35).
View NICE guidance
