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Sources and Methodology
This page explains how our review was conducted and provides the public sources behind the reference tags used across our Innovation pages. Each reference tag appears like [162]. Where possible, tags link directly to a specific source entry on this page.
Methodology at a Glance
This review prioritizes primary sources: Apple App Store pages (feature descriptions, version history, privacy labels), Google Play listings (feature descriptions, “Updated on” dates, Data Safety disclosures, developer addresses), and developer privacy policies and terms.
Key sources used include: EasyPKU App Store and Google Play listings and updates [155]; flok Health Google Play listing and flok Help Center docs [156]; How Much Phe site pages and privacy policy [157]; MethioPocket and LeuciPocket store pages and privacy policies [158]; MDDA My Low Pro Pal listing plus membership and privacy pages [159]; MetabolicPro and GMDI pages [160]; AccuGo App Store listings and privacy policy [161]; MyRareDiet research status [39]; and Canadian privacy regulator guidance for cross-border processing and safeguards [162].
All “not specified” labels mean the information was not found in the public sources reviewed above.
Questions to Ask a Developer
If a detail is listed as “not specified,” consider asking the developer the questions below before sharing app data with schools, caregivers, or clinics.
Suggested questions
- Where is data stored (data residency) and which vendors host it?
- Is data encrypted in transit and encrypted at rest?
- How long is data retained, and can users set retention or delete all data?
- What is the deletion workflow and timeline (including backups)?
- What export formats are supported (PDF, CSV, JSON) and are exports complete?
- Are any advertising, analytics, or tracking SDKs present?
- Can the app function offline or store data locally?
- Can a clinic or caregiver access data, and how is access controlled?
Jump to sources
Canadian Privacy Guidance
Office of the Privacy Commissioner of Canada and Ontario PHIPA resources
Cross-border processing guidance and safeguards expectations (PIPEDA and related guidance). [1] [144] [145] [162]
- OPC: Cross-border transfers guidance: https://www.priv.gc.ca/en/privacy-topics/airports-and-borders/gl_dab_090127/
- OPC: PIPEDA safeguards principle: https://www.priv.gc.ca/en/privacy-topics/privacy-laws-in-canada/the-personal-information-protection-and-electronic-documents-act-pipeda/p_principle/principles/p_safeguards/
- Ontario IPC: PHIPA FAQ: https://www.ipc.on.ca/en/resources-and-decisions/frequently-asked-questions-personal-health-information-protection-act
- Ontario PHIPA statute: https://www.ontario.ca/laws/statute/04p03
App and Platform Sources
flok nutrition science and data transparency
Source for statements about USDA plus MetabolicPro amino-acid values, estimates where missing, and additional lab-tested values. [2] [67] [154]
https://flok.org/news/floknutritionscience/EasyPKU sources
App listings and privacy policy
- Apple App Store: https://apps.apple.com/us/app/easypku/id6480478980 (tags: [3] [7] [8] [10] [49] [51] [53] [54] [57] [155])
- Google Play: https://play.google.com/store/apps/details?hl=en-US&id=com.easypku.app.v2 (tags: [9] [50] [52] [58])
- Developer privacy policy: https://easypku.com/privacy/ (tag: [56])
flok Health sources
Store listing and help center
- Google Play: https://play.google.com/store/apps/details?hl=en-US&id=com.flok.flokhealth (tags: [4] [11] [13] [14] [60] [68] [156])
- Apple App Store: https://apps.apple.com/us/app/flok-health/id1666886583 (tags: [33] [36] [55] [119])
- Canada availability: https://docs.flok.org/en/articles/10111146-i-m-in-canada-or-another-country-outside-the-united-states-can-i-use-the-flok-app (tags: [12] [59] [66] [70])
- Eat FAQ: https://docs.flok.org/en/articles/9251366-eat-quick-reference-and-faq (tags: [61] [65])
- Sharing and access: https://docs.flok.org/en/articles/9251871-can-my-dietitian-or-doctor-access-my-flok-app-data (tags: [63] [69])
- Research platform participation: https://docs.flok.org/en/articles/9251263-do-i-need-to-share-my-data-with-the-flok-research-platform-to-use-the-flok-app (tag: [62])
- Data security and privacy approach: https://docs.flok.org/en/articles/9251239-what-is-flok-s-approach-to-data-security-and-privacy (tag: [64])
- See also: flok nutrition science and data transparency (tags: [2] [67] [154])
How Much Phe sources
Site pages, privacy policy, and flok doc about availability
- Main site: https://howmuchphe.org/ (tags: [17] [74] [79] [81] [157])
- FAQ: https://howmuchphe.org/site/faq (tags: [15] [72] [75] [76])
- About: https://howmuchphe.org/site/about (tag: [73])
- Privacy: https://howmuchphe.org/site/privacy (tags: [16] [48] [78] [83])
- Availability note (flok docs): https://docs.flok.org/en/articles/8126425-how-much-longer-will-how-much-phe-be-available (tags: [5] [71] [80])
- Subscription price note: (no title) (tags: [18] [47] [82] [139] [143])
LeuciPocket sources
Store listings and privacy policy
- Google Play: https://play.google.com/store/apps/details?hl=en&id=com.houard.leucipocket (tags: [19] [20] [93] [94] [96] [98])
- Privacy policy: https://sites.google.com/view/leucipocket/privacy-policy (tags: [21] [97] [99])
- Apple App Store: https://apps.apple.com/us/app/leucipocket/id6447127211 (tags: [22] [95] [153])
MethioPocket sources
Store listings and privacy policy
- Apple App Store: https://apps.apple.com/us/app/methiopocket/id6480476641 (tags: [23] [24] [85] [88] [158])
- Google Play: https://play.google.com/store/apps/details?hl=en-US&id=com.houard.methiopocket (tags: [84] [86])
- Privacy policy: https://sites.google.com/view/methiopocket/privacy-policy (tags: [25] [87] [89] [90] [91] [92])
My Low Pro Pal (MDDA) sources
Listing, membership, and privacy pages
- Google Play: https://play.google.com/store/apps/details?hl=en-US&id=com.mdda.mylowpropalapp (tags: [26] [27] [102] [159])
- Overview: https://mdda.org.au/my-low-pro-pal/ (tags: [28] [100] [104])
- App privacy policy: https://mdda.org.au/my-low-pro-pal/app-privacy-policy/ (tags: [101] [105])
- MDDA membership: https://mdda.org.au/mdda-membership/ (tag: [103])
MetabolicPro (GMDI) sources
Product pages, features, FAQs, and privacy
- GMDI MetabolicPro page: https://gmdi.org/MetabolicPro (tags: [29] [31] [109] [160])
- MetabolicPro site: https://metabolicpro.org/ (tags: [30] [106] [107] [108])
- Pricing example: https://gmdi.org/Marketplace/Details/metabolicpro-initial-license-non-member-rate (tag: [32])
- Features: https://www.gmdi.org/Resources/Metabolic-Pro/MetabolicPro-Features (tag: [110])
- FAQs: https://gmdi.org/Resources/Metabolic-Pro/MetabolicPro-Frequently-Asked-Questions (tags: [111] [112] [115])
- Privacy: https://metabolicpro.org/privacy.php (tags: [113] [114])
AccuGo sources
App listings and privacy policy
- AccuGo for PKU (Apple App Store): https://apps.apple.com/us/app/accugo-for-pku/id477075228 (tags: [6] [34] [35] [116] [117] [118] [120] [122] [123] [161])
- AccuGo for HCU (Apple App Store): https://apps.apple.com/us/app/accugo-for-hcu/id955040363 (tags: [37] [38] [124] [127])
- AccuGo privacy policy: https://accugo.com/privacy/ (tags: [121] [125] [126])
MyRareDiet sources
Research status and trial information
- NUCDF overview article: https://nucdf.org/news.html/article/2025/05/13/overview-of-myrarediet-a-diet-tracking-tool-for-patients-with-inborn-errors-of-metabolism (tags: [39] [41])
- ClinicalTrials.gov: https://clinicaltrials.gov/study/NCT06664840 (tags: [128] [129])
- Trial listing mirror: https://trial.medpath.com/clinical-trial/f9d79c444d559fa7/nct06664840-myrarediet-diet-tool-inborn-metabolism (tags: [40] [130])
MetabolicDiets.com sources
Portal and related publications
- MetabolicDiets.com: https://metabolicdiets.com/ (tags: [42] [131] [132] [136])
- BMJ JMG abstract: https://jmg.bmj.com/content/52/Suppl_1/A9.3 (tags: [43] [133] [135])
- New England Consortium resources list: https://www.newenglandconsortium.org/low-protein-diet-resources (tag: [44])
Metabolic Balancer (Cambrooke) sources
Store listings and related pages
- Apple App Store: https://apps.apple.com/us/app/metabolic-balancer/id335901843?l=zh (tags: [45] [140])
- Google Play: https://www.play.google.com/store/apps/details?hl=en&id=com.cambrooke.MetabolicBalancer (tags: [46] [142])
- Cambrooke privacy policy: https://www.cambrooke.com/privacy/ (tag: [141])
- Cambrooke shop category (metabolic): https://shop.cambrooke.com/category/19/metabolic (tag: [137])
- AppBrain listing: https://www.appbrain.com/app/metabolic-balancer/com.cambrooke.MetabolicBalancer (tag: [138])
Other Resources Referenced
ScienceDirect article
https://www.sciencedirect.com/science/article/pii/S1096719215300913(tag: [134])
Additional app links (not yet summarized on tool pages)
- https://play.google.com/store/apps/details?hl=en-US&id=com.julianwaluschyk.dietassistant (tag: [148])
- https://play.google.com/store/apps/details?hl=en-US&id=app.pkudiet (tag: [149])
- https://apps.apple.com/us/app/cycle-vita-pku/id6737810019 (tag: [150])
- https://play.google.com/store/apps/details?hl=en-US&id=com.app.pkubite (tag: [151])
- https://www.pkupal.com/ (tag: [152])