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Research & Innovation

Research starts with questions.
Progress happens when we work together.

Research helps us better understand inherited metabolic disorders, improve care, and explore new possibilities for treatment and support. CanPKU+ connects our community with opportunities to participate, learn, discover and collaborate.

Research Articles & Updates

Find Your Way

Explore research in the way that makes sense for you.

Participate
Take Part in Research

Your experience can help build knowledge. Explore registries and current opportunities to participate in studies, surveys and other research.

Learn
Explore Research

See what researchers are discovering through published research, findings and timely updates selected for the CanPKU+ community.

Discover
Innovation & Therapies

Explore treatments, emerging therapies, digital tools and other innovations that may influence how inherited metabolic disorders are understood and managed.

Explore Innovation & Therapies
Connect
Researchers & Partners

Meet researchers, networks and organizations contributing to knowledge, collaboration and progress across inherited metabolic disorders.

Researchers & Partners Hub
Research + Community

Research is stronger with community involvement.

People living with inherited metabolic disorders and their families bring knowledge that cannot be found in a laboratory or medical record.

Community members can contribute in many ways, from joining a registry or completing a survey to participating in a study, identifying research priorities or sharing lived experience.

Find Opportunities to Participate
Stay Current

What's New in Research?

Follow new studies, published findings, research opportunities and emerging discoveries relevant to PKU and allied inherited metabolic disorders.

Browse Research Articles & Updates
About research participation: Information about research opportunities is provided for general awareness. Eligibility, risks, benefits and participation requirements should be discussed directly with the study team and, where appropriate, your healthcare providers.