Research opportunities

Research Studies for Adults

This page highlights research opportunities for adults living with PKU, HCU, MSUD, or UCDs. Opportunities may include clinical trials, observational research, registries, surveys, and studies focused on adult health, treatment, transition, pregnancy, aging, and quality of life.

Good to know: Adult studies may include a wide range of participation levels, from online surveys to in-person interventional trials. Eligibility varies by age, diagnosis, treatment history, location, and medical criteria.

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Study types Current opportunities External search tools

Common study types for adults

Interventional and treatment studies
Natural history and observational studies
Pregnancy and reproductive health studies
Registry participation
Surveys about quality of life, daily management, and adult care needs

Current opportunities

Adult-focused study cards will be added here as opportunities present

External search tools

You can also explore broader listings through trusted databases.

Search ClinicalTrials.gov Search Viper Clinical Trials