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Sources and Methodology
This page explains how our review was conducted and provides the public sources behind the reference tags used across our Innovation pages. Each reference tag appears like [162]. Where possible, tags link directly to a specific source entry on this page.
Methodology at a Glance
This review prioritizes primary sources: Apple App Store pages (feature descriptions, version history, privacy labels), Google Play listings (feature descriptions, �Updated on� dates, Data Safety disclosures, developer addresses), and developer privacy policies and terms.
Key sources used include: EasyPKU App Store and Google Play listings and updates [155]; flok Health Google Play listing and flok Help Center docs [156]; How Much Phe site pages and privacy policy [157]; MethioPocket and LeuciPocket store pages and privacy policies [158]; MDDA My Low Pro Pal listing plus membership and privacy pages [159]; MetabolicPro and GMDI pages [160]; AccuGo App Store listings and privacy policy [161]; MyRareDiet research status [39]; and Canadian privacy regulator guidance for cross-border processing and safeguards [162].
All �not specified� labels mean the information was not found in the public sources reviewed above.
Questions to Ask a Developer
If a detail is listed as �not specified,� consider asking the developer the questions below before sharing app data with schools, caregivers, or clinics.
Suggested questions
- Where is data stored (data residency) and which vendors host it?
- Is data encrypted in transit and encrypted at rest?
- How long is data retained, and can users set retention or delete all data?
- What is the deletion workflow and timeline (including backups)?
- What export formats are supported (PDF, CSV, JSON) and are exports complete?
- Are any advertising, analytics, or tracking SDKs present?
- Can the app function offline or store data locally?
- Can a clinic or caregiver access data, and how is access controlled?
Jump to sources
Canadian Privacy Guidance
Office of the Privacy Commissioner of Canada and Ontario PHIPA resources
Cross-border processing guidance and safeguards expectations (PIPEDA and related guidance). [1] [144] [145] [162]
- OPC: Cross-border transfers guidance: https://www.priv.gc.ca/en/privacy-topics/airports-and-borders/gl_dab_090127/
- OPC: PIPEDA safeguards principle: https://www.priv.gc.ca/en/privacy-topics/privacy-laws-in-canada/the-personal-information-protection-and-electronic-documents-act-pipeda/p_principle/principles/p_safeguards/
- Ontario IPC: PHIPA FAQ: https://www.ipc.on.ca/en/resources-and-decisions/frequently-asked-questions-personal-health-information-protection-act
- Ontario PHIPA statute: https://www.ontario.ca/laws/statute/04p03
App and Platform Sources
flok nutrition science and data transparency
Source for statements about USDA plus MetabolicPro amino-acid values, estimates where missing, and additional lab-tested values. [2] [67] [154]
https://flok.org/news/floknutritionscience/EasyPKU sources
App listings and privacy policy
- Apple App Store: https://apps.apple.com/us/app/easypku/id6480478980 (tags: [3] [7] [8] [10] [49] [51] [53] [54] [57] [155])
- Google Play: https://play.google.com/store/apps/details?hl=en-US&id=com.easypku.app.v2 (tags: [9] [50] [52] [58])
- Developer privacy policy: https://easypku.com/privacy/ (tag: [56])
flok Health sources
Store listing and help center
- Google Play: https://play.google.com/store/apps/details?hl=en-US&id=com.flok.flokhealth (tags: [4] [11] [13] [14] [60] [68] [156])
- Apple App Store: https://apps.apple.com/us/app/flok-health/id1666886583 (tags: [33] [36] [55] [119])
- Canada availability: https://docs.flok.org/en/articles/10111146-i-m-in-canada-or-another-country-outside-the-united-states-can-i-use-the-flok-app (tags: [12] [59] [66] [70])
- Eat FAQ: https://docs.flok.org/en/articles/9251366-eat-quick-reference-and-faq (tags: [61] [65])
- Sharing and access: https://docs.flok.org/en/articles/9251871-can-my-dietitian-or-doctor-access-my-flok-app-data (tags: [63] [69])
- Research platform participation: https://docs.flok.org/en/articles/9251263-do-i-need-to-share-my-data-with-the-flok-research-platform-to-use-the-flok-app (tag: [62])
- Data security and privacy approach: https://docs.flok.org/en/articles/9251239-what-is-flok-s-approach-to-data-security-and-privacy (tag: [64])
- See also: flok nutrition science and data transparency (tags: [2] [67] [154])
How Much Phe sources
Site pages, privacy policy, and flok doc about availability
- Main site: https://howmuchphe.org/ (tags: [17] [74] [79] [81] [157])
- FAQ: https://howmuchphe.org/site/faq (tags: [15] [72] [75] [76])
- About: https://howmuchphe.org/site/about (tag: [73])
- Privacy: https://howmuchphe.org/site/privacy (tags: [16] [48] [78] [83])
- Availability note (flok docs): https://docs.flok.org/en/articles/8126425-how-much-longer-will-how-much-phe-be-available (tags: [5] [71] [80])
- Subscription price note: (no title) (tags: [18] [47] [82] [139] [143])
LeuciPocket sources
Store listings and privacy policy
- Google Play: https://play.google.com/store/apps/details?hl=en&id=com.houard.leucipocket (tags: [19] [20] [93] [94] [96] [98])
- Privacy policy: https://sites.google.com/view/leucipocket/privacy-policy (tags: [21] [97] [99])
- Apple App Store: https://apps.apple.com/us/app/leucipocket/id6447127211 (tags: [22] [95] [153])
MethioPocket sources
Store listings and privacy policy
- Apple App Store: https://apps.apple.com/us/app/methiopocket/id6480476641 (tags: [23] [24] [85] [88] [158])
- Google Play: https://play.google.com/store/apps/details?hl=en-US&id=com.houard.methiopocket (tags: [84] [86])
- Privacy policy: https://sites.google.com/view/methiopocket/privacy-policy (tags: [25] [87] [89] [90] [91] [92])
My Low Pro Pal (MDDA) sources
Listing, membership, and privacy pages
- Google Play: https://play.google.com/store/apps/details?hl=en-US&id=com.mdda.mylowpropalapp (tags: [26] [27] [102] [159])
- Overview: https://mdda.org.au/my-low-pro-pal/ (tags: [28] [100] [104])
- App privacy policy: https://mdda.org.au/my-low-pro-pal/app-privacy-policy/ (tags: [101] [105])
- MDDA membership: https://mdda.org.au/mdda-membership/ (tag: [103])
MetabolicPro (GMDI) sources
Product pages, features, FAQs, and privacy
- GMDI MetabolicPro page: https://gmdi.org/MetabolicPro (tags: [29] [31] [109] [160])
- MetabolicPro site: https://metabolicpro.org/ (tags: [30] [106] [107] [108])
- Pricing example: https://gmdi.org/Marketplace/Details/metabolicpro-initial-license-non-member-rate (tag: [32])
- Features: https://www.gmdi.org/Resources/Metabolic-Pro/MetabolicPro-Features (tag: [110])
- FAQs: https://gmdi.org/Resources/Metabolic-Pro/MetabolicPro-Frequently-Asked-Questions (tags: [111] [112] [115])
- Privacy: https://metabolicpro.org/privacy.php (tags: [113] [114])
AccuGo sources
App listings and privacy policy
- AccuGo for PKU (Apple App Store): https://apps.apple.com/us/app/accugo-for-pku/id477075228 (tags: [6] [34] [35] [116] [117] [118] [120] [122] [123] [161])
- AccuGo for HCU (Apple App Store): https://apps.apple.com/us/app/accugo-for-hcu/id955040363 (tags: [37] [38] [124] [127])
- AccuGo privacy policy: https://accugo.com/privacy/ (tags: [121] [125] [126])
MyRareDiet sources
Research status and trial information
- NUCDF overview article: https://nucdf.org/news.html/article/2025/05/13/overview-of-myrarediet-a-diet-tracking-tool-for-patients-with-inborn-errors-of-metabolism (tags: [39] [41])
- ClinicalTrials.gov: https://clinicaltrials.gov/study/NCT06664840 (tags: [128] [129])
- Trial listing mirror: https://trial.medpath.com/clinical-trial/f9d79c444d559fa7/nct06664840-myrarediet-diet-tool-inborn-metabolism (tags: [40] [130])
MetabolicDiets.com sources
Portal and related publications
- MetabolicDiets.com: https://metabolicdiets.com/ (tags: [42] [131] [132] [136])
- BMJ JMG abstract: https://jmg.bmj.com/content/52/Suppl_1/A9.3 (tags: [43] [133] [135])
- New England Consortium resources list: https://www.newenglandconsortium.org/low-protein-diet-resources (tag: [44])
Metabolic Balancer (Cambrooke) sources
Store listings and related pages
- Apple App Store: https://apps.apple.com/us/app/metabolic-balancer/id335901843?l=zh (tags: [45] [140])
- Google Play: https://www.play.google.com/store/apps/details?hl=en&id=com.cambrooke.MetabolicBalancer (tags: [46] [142])
- Cambrooke privacy policy: https://www.cambrooke.com/privacy/ (tag: [141])
- Cambrooke shop category (metabolic): https://shop.cambrooke.com/category/19/metabolic (tag: [137])
- AppBrain listing: https://www.appbrain.com/app/metabolic-balancer/com.cambrooke.MetabolicBalancer (tag: [138])
Other Resources Referenced
ScienceDirect article
https://www.sciencedirect.com/science/article/pii/S1096719215300913(tag: [134])
Additional app links (not yet summarized on tool pages)
- https://play.google.com/store/apps/details?hl=en-US&id=com.julianwaluschyk.dietassistant (tag: [148])
- https://play.google.com/store/apps/details?hl=en-US&id=app.pkudiet (tag: [149])
- https://apps.apple.com/us/app/cycle-vita-pku/id6737810019 (tag: [150])
- https://play.google.com/store/apps/details?hl=en-US&id=com.app.pkubite (tag: [151])
- https://www.pkupal.com/ (tag: [152])