MSUD Fall Webinar for individuals and families
Thursday, October 29, 2026 | 6:00 PM ET | Virtual | Free
CanPKU+ shares selected webinars and learning opportunities from trusted organizations when they may be useful to people and families affected by inherited metabolic disorders. The MSUD Family Support Group is hosting this webinar about the role of community participation in MSUD research.
Research moves forward with the involvement of the MSUD community. This webinar will explore why community voices matter and how individuals and families can take part in research.
Topics include clinical trials, natural history studies, surveys, biobanks and the MSUD Patient Registry. The session will discuss how different forms of participation contribute to a better understanding of MSUD and future research.
Presented by: MSUD Family Support Group
Date: Thursday, October 29, 2026
Time: 6:00 PM ET
Location: Virtual
Cost: Free
This webinar is hosted by the MSUD Family Support Group. Please check with the organizer for the latest event details and registration information.
The Power of Participation: Research and the MSUD Community
