Webinar for people living with PKU, families and caregivers
Tuesday, October 27, 2026 | 8:00 PM EDT | Virtual | Registration required
CanPKU+ shares selected webinars, workshops and resources from trusted organizations when they may be relevant to the rare-disease families we serve. This upcoming webinar, presented by PTC Therapeutics, will explore food, possibilities and real-world perspectives on SEPHIENCE™ (sepiapterin) and living with PKU.
The session will feature perspectives from a registered dietitian and a PKU caregiver on this new treatment and what it may mean for how people live and eat with PKU.
Speakers: Nina Mickle, registered dietitian, and Kelly Baldino, PKU caregiver
Presented by: PTC Therapeutics
Date: Tuesday, October 27, 2026
Time: 5:00 PM PDT / 8:00 PM EDT
Location: Virtual
Registration: Required
Register for the webinar through the link below.
CanPKU+ develops educational programming for people affected by PKU, HCU, MSUD, UCDs and allied inherited metabolic disorders. We also share selected opportunities from other organizations when they may offer useful information or perspectives for our community.
This webinar is presented by PTC Therapeutics. The discussion is an educational opportunity; individual experiences do not necessarily predict how another person may respond to treatment. Speak with your metabolic care team about questions related to treatment or dietary changes.
Knowledge is key. CanPKU+ will continue to share educational opportunities that may be relevant to our community as they become available.