Nicole Pallone was elected Chair of CanPKU+ in September 2024, a role that reflects her deep commitment to the organization and the rare metabolic disease community it serves.

Her journey with PKU began in 2008, just three days after the birth of her eldest daughter. This personal connection ignited a passion for advocacy and support, which quickly translated into active involvement with CanPKU+. She first joined the Board in 2010, serving as Vice President for six years and as a Director for a full decade. During this time, she played a key role in the successful effort to have low-protein medical foods covered in British Columbia—the last province in Canada to provide this essential support. That achievement, realized in January 2014, stands as a testament to the power of united patient and caregiver advocacy.

Nicole has remained deeply engaged in research related to metabolic disorders and is a strong proponent of including Patient Partners in scientific initiatives. Over the years, she has collaborated with institutions such as SickKids, the Children’s Hospital of Eastern Ontario, INFORM RARE, and McMaster University, helping ensure that the voices of patients and caregivers are integrated into research planning and decision-making.

As Chair, Nicole brings both experience and vision to the future of CanPKU+. She is committed to leading the organization through a period of strategic growth, reviewing its structure, policies, and procedures to ensure its operations are responsive, transparent, and community-focused.

Nicole is honoured to return to the Board during this pivotal chapter and looks forward to advancing the mission of CanPKU+ in service of individuals and families living with rare metabolic disorders across Canada.