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Documents - Family Engagement in Research
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4 Documents
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bilingue/bilingual
English
Francais
Keyword...
HCU - Homocystinuria
MSUD - Maple Syrup Urine Disorder
PKU - Phenylketonuria
TYR - Tyrosinemia Type
UCD - Urea Cycle Disorder
Carrier Study
(English)
Author(s):
Dr. Justine Keathley
Rating:
No Rating
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Description:
Are you a Family Member of Someone with PKU? Help to Advance Research! ?? Researchers at the University of Guelph want to better understand if there are potential health and cognitive impacts of phenylalanine consumption (found in high-protein foods/beverages and aspartame) in PKU carriers.
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YouTube
Le Registre Canadien de la PCU
(English)
Author(s):
Inform Rare; CanPKU+
Rating:
No Rating
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jpg
Patient Partners and Parent Advisory Group Update
(English)
Author(s):
Inform Rare
Rating:
No Rating
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PDF
Parent Advisory Group Recruitment
(English)
Author(s):
Inform Rare
Rating:
No Rating
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Description:
Recruitment form - Oct 2023 Now closed
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