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Documents - Physically Well
Results:
18 Documents
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bilingue/bilingual
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Francais
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HCU - Homocystinuria
MSUD - Maple Syrup Urine Disorder
PKU - Phenylketonuria
TYR - Tyrosinemia Type
UCD - Urea Cycle Disorder
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Why should I get genetic testing?
(English)
Author(s):
NORD, NPKUA
Rating:
No Rating
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PDF
Starting School with MSUD
(English)
Author(s):
CanPKU+; Needleman, Susan; Mason,Stacy; Chute, Tanya
Rating:
No Rating
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Starting School with UCDs
(English)
Author(s):
CanPKU+; Garstin, Michaela; Chute, Tanya
Rating:
No Rating
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PDF
PKU Starting School
(English)
Author(s):
CanPKU+; Chute, Tanya
Rating:
No Rating
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PDF
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Oral Health and Rare Disorders
(English)
Author(s):
CanPKU+; Chute, Tanya
Rating:
No Rating
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BC Access to timely Medications
(English)
Author(s):
Best Medicine Coalition
Rating:
No Rating
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Description:
CanPKU+ is a member of the Best Medicine Coalition (BMC)
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Understanding the Burden of Classical Homocystinuria (HCU) From the Patient’s Perspective: A Qualitative Study
(English)
Author(s):
Bartke,Danaé; Pokrzywinski, Robin; Clucas, Claudine; Machuzak,Kathy; Pinto, Lionel; Travere
Rating:
No Rating
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Description:
Qualitative interviews with adult patients, pediatric patients, and caregivers elicited in-depth descriptions of how patients with HCU are affected and burdened by various aspects of their disease experience
PDF
Amino Acids in our Rares
(English)
Author(s):
CanPKU+; Chute, Tanya
Rating:
No Rating
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Drive to Thrive
(English)
Author(s):
CanPCU+
Rating:
No Rating
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Classroom News
(English)
Author(s):
Ajinomoto Cambrooke
Rating:
No Rating
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Description:
Starting School.
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