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After checking out these awesome resources, don't forget to check out what we have that is more specific for Your Rare!

Genome provides a great glossary for scientific words. Check it out here if you need some help!

We can help you by the stage you are at:

We can help you search by your rare:

We can help you by the topic you need more information about:

It truly takes a village and it needs more than that to keep this section up to date! Please send us items you have found that you believe would be beneficial to others!

Please also be sure to check out our drop down menu under Research and Patient Supports which may provide more information to support your needs.

"How Much Phe" or HMP is used by many individuals and families to help look up and track their foods. There is much more information on their website

. Check it out. Want to sign up? Don't forget to email in order to get a $10 off coupon!


The Science/Biology

20 Common Amino Acids (as found on

Amino Acid Disorders

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