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Stories

Discover shared experiences, learn how to tell your story, and add your voice to our community.

Rare Awareness Radio

A six-part limited series exploring our national not-for-profit organization, our CARES pillars, and raising awareness across Canada's rare metabolic community.

Discover

Meet members of our rare community. Open a condition to explore stories shared by individuals and families living with these disorders.

Learn

Learn how to share your experience in a way that feels comfortable, helpful, and meaningful.

Learn How to Tell Your Story

Your story can help someone feel less alone. Share a moment, a lesson learned, or a piece of your journey to welcome others into the community.

If you shared your story years ago, we welcome updates. Your journey evolves, and your voice still matters.

Send your story to: NewsEditor@CanPKU.org

Tell us how you would like it used, such as website, newsletter, or future projects.

Terms for our Media Waiver

Last updated: May 2026. If you notice information that should be updated, please contact website@canpku.org.