Brittany Parke is the research coordinator for HCU Network America and the mother of four children, including two boys born with Homocystinuria Cobalamin G. Her first son, Drew, went undiagnosed and suffered severe brain atrophy, seizures and passed away at 3 ½ months old. Her son Grayson is 6 years old and thriving, due to early identification and treatment.

Her role as research coordinator includes overseeing the Homocystinuria Data Collection program powered by RareX. Using the data from RareX, she supports the mission of HCU Network America by presenting poster abstracts at scientific conferences to raise awareness and advance research for patients. In addition,

Brittany manages the global grants program which currently has 5 open research projects.