Access to and reimbursement for new drugs and other treatments for metabolic (and other) diseases

Patient Engagement in Ontario Drug Reimbursement Decision Making Process

Place:   Delta Chelsea Hotel Toronto - Rossetti Room

            33 Gerrard St. West, Toronto ON M5G 1Z4

Date:    Thursday, November 13, 2008

Time:    8:30 am - 11:00 am

January 2009 European conference on PKU treatment

1st EUROPEAN PHENYLKETONURIA GROUP (EPG)

SYMPOSIUM

"ADVANCES AND CHALLENGES IN PKU"

Barcelona, Spain - January 16-17, 2009

Nova Scotia clinic event

PKU Ed Day Nov 22 2008 Invitation

Living with PKU at Any Age

Webcast Tuesday, October 29, 2008 8 pm Eastern/5 pm Pacific

I highly recommend giving a listen to this program. If the time is not convenient, it will be available as re-broadcast within a day or two of the live program.  My son and I have had the pleasure of getting to know Dr. Koch (who has rightly been called Dr. PKU) and enjoyed a stay at his home this year.  FYI, I have sent this following information to dieticians and others with most contact with patients and families at the clinics across Canada. John