CanPKU+ Virtual Open House

  • 2024-02-28
  • 8:00 PM - 9:00 PM
  • Virtual

Registration

  • Please let us know what Allied Disorder you or the the one you are about has.
  • You or someone you love has HCU.
  • You or someone you love has MSUD.
  • You or someone you love has PKU.
  • You or someone you love has TYR.
  • You or someone you love has a UCD.

Registration is closed

Topic: Virtual Open House for CanPKU+

Starts 5pm PT, 6pm MT, 7pm CT , 8PM ET, 9PM AT, 930PM NT

The time of the event shows as EASTERN (ET) Please adjust using the times above for your town region.

We welcome our allied disorders communities to join us to hear about what CanPKU+ can offer to you. Meet the lead people involved in your specific rare. Learn about changes to the Disability Tax Credit (or prevent a disability as we prefer to see it called).  Hear about upcoming events and maybe even learn about a new allied disorder!

We welcome those with Homocystinuria (HCU),  Maple Syrup Urine Disease (MSUD), Phenylketonuria (PKU) and Urea Cycle Diseases (UCDs). 

We do not yet have a lead person for Tyrosinemia - but you are not excluded from attending.

This event is being offered in English.


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