Bickel, Horst (1952) Aminoaciduria in childhood. Ph.D. thesis, University of Birmingham
 
Most of you will know that the first and also successful trial of dietary treatment of PKU took place at Birmingham Children’s Hospital, England in the 1950s.  The PhD thesis of Dr Horst Bickel who was the main investigator has been available in the Library at Birmingham University for over 50 years.
In recognition of the value and significance of the thesis Birmingham University’s Digital Assets Programme, Academic Services Department, Library Services, is ‘pleased to confirm that the scanned copy of Horst Bickel's thesis is now available to download from http://etheses.bham.ac.uk/842/.  The description of the dietary trial is recorded on thesis pages 36-46 (pdf pages 67-80) and is very legible. To download a PDF version click here.

Letter to Medical Genetics Clinic University of Alberta Hospital  - by Ciaara Christante
 
I am very upset by these recent changes.  The reasons given for the cutbacks are somewhat offending... To read the complete letter click here

Polo for Kids 2009 Event summary and pictures

75th Anniversary of the Discovery of PKU 2009
A History of Scientific Breakthroughs Inspired by Personal Stories
Presentation developed by Dr. Laura Sloan, mother of a girl with PKU
Assisted by, and Inspired by an idea of, John Adams, father of an adult with PKU

Our President and CEO John Adams joined Edmonton and Saskatoon PKU and other metabolic disorders families at the PKU Community Day in Edmonton on November 29th, 2008.

by John Adams

Toronto Dad Raises over $10,000 for PKU
by Laura Sloan

Canada’s First PKU Walk-A-Thon
by Amanda Cosburn

London Metabolic Family Workshop - Friday May 30, 2008
by Laura Sloan

Click here to see the clip from CTV News at 11:30 aired after the event.

PKU Historical Information

Program for the international scientific conference on PKU in 2000, which produced the consensus on ‘Diet for life’

PKU Family Association Newsletter July 1990