Canadian PKU and Allied Disorders Inc. is a non-profit association of volunteers, first organized in the Spring of 2008 based in Toronto, Ontario.

We are dedicated to providing accurate news, information and support to families and professionals dealing with phenylketonuria and similar, rare, inherited metabolic disorders.

Our mission is to improve the lives of people with PKU and allied disorders and the lives of their families.

By allied disorders, we mean other rare, inherited metabolic disorders also detected by the modern miracle of newborn screening.

Download our brochure (pdf English version)

Download our brochure (pdf French version)

Download our Newsletter June 2008 v1/n1 (pdf)

Our Medical Advisor: William B. Hanley, MD, FRCPC
Founder, Honorary Physician & Director Emeritus, PKU Programme, Hospital for Sick Children, Toronto, ON
Project Investigator, The Research Institute at the Hospital for Sick Children
He was honoured with “Lessons Learned from PKU - Symposium in Honor of Dr WB Hanley”. Annual Meeting of the Canadian Pediatric Society, Winnipeg, MB June 27, 1999.
He is active in PKU research and runs a private clinic in pediatrics primary care.

Read one of Dr. Hanley's latest articles: Phenylketonuria: Questioning the gospel

Download Dr. Hanley's curriculum

Join us to better cope with PKU and allied disorders, to ease the burden of strict diets, to improve support and to help find cures.

Our mission can be accomplished by:

• Promoting and supporting research
• Increasing public awareness of PKU and other inherited metabolic disorders
• Supporting individuals, families and organizations at local and regional levels
• Collaborating with existing patient and professional organizations
• Sponsoring meetings to help bring together families, doctors, nutritionists, counselors and researchers
• Establishing a national advisory board of scientists and clinicians
• Collaborating on and helping distribute educational materials and programs
• Advocating for affecting persons and families with governments and insurance companies
• Building national databases of needed information on programs and services
• Stimulating creation of new products (home monitoring device, low-phe foods, etc.)
• Understanding the global state of research, products and standards of care.

Canadian PKU and Allied Disorders Inc. - Letter of Incorporation

Canadian PKU and Allied Disorders Inc. - BY-LAW NO.1