Amanda Horner is a passionate PKU advocate, mentor, author, and mother who has been an active leader in the PKU community for over a decade. Diagnosed with classical phenylketonuria (PKU) at birth in 1986, Amanda was told throughout her life that pregnancy might never be possible due to the risks of maternal PKU. Today, she lives what she once only dreamed of—raising a healthy family alongside her partner of over 20 years, Cole. Amanda is the proud mother of two beautiful daughters and is currently expecting their third child, a son, in October 2025.

Amanda’s journey has been one of defying expectations with the support of medical advancements, a committed care team, and her own unwavering determination. Living with PKU hasn’t been easy—it’s a lifelong journey that changes with every stage of life. Amanda has made it her mission to speak up for adult voices in the PKU community, ensuring that the unique challenges faced in adulthood, including mental health, access to care, and maternal health, are not overlooked.

Her involvement with CanPKU+ began in 2012, and she has served in many roles over the years—including board member, local event host, volunteer, and advocate. She played a pivotal role in securing low-protein food coverage in British Columbia through advocacy meetings with provincial leadership. Amanda now serves as a Maternal PKU Mentor, offering one-on-one support to women navigating pregnancy with PKU, and manages several online PKU support groups that connect individuals and families across Canada and beyond.

In 2024, Amanda published her memoir —a deeply personal and powerful account of her experience navigating pregnancy with PKU. She also authors the blog PKU Strong, where she shares insights, resources, and reflections on living with PKU as a woman, mother, and advocate.

Amanda’s mission is clear: to give voice to adults with PKU, reduce isolation, and promote greater awareness and systemic change. Her story is a testament to the power of perseverance, community, and hope. As she often says:
"Alone we are rare. Together we are strong."

This Building Bridges virtual event is proudly brought to you in partnership with CanPKU+, a national nonprofit supporting individuals and families impacted by PKU, MSUD, HCU, and UCDs.